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Brain Cancer Awareness - from a Patient's Perspective

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Brain Cancer Messages
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Partha Rai Chowdhuri

I was able to travel this way again... but reached many months too late. I'd really hoped to be able to see David once again. Not being able to do so is one of life's losses.

It felt very bad to learn of his last journey from so far away, but it was worse to get here and realize this so directly. One keeps quiet for so long only to have to finally pay inevitable condolences.

David was special because he realized his own good fortune and cared to bring some of it the lives of those he knew and met.
The next time I come across him, he will be as he was when I knew him, restored to health and happiness eternally.

   
Posted Date: 6 March 2010     

Rebeca ex BBBC

David..........I don't know where you are, but your are always here in my mind. Going to the the bakery is a bitter sweet visit without you there. Hope one day I will run into your father and give him a big hug.Your father's face is still clear to me, but I have to picture your mother in order to see you.....you got her good looks......................See you.................

   
Posted Date: 5 March 2010     

Denae

Do we know what type of tumor was resected from the patient in the video? I can't see that they actually resected it in the video, right?

Denae
Oceanside, California

First Temporal/Frontal Lobe Seizure: 11/2005
Dx: Oligo(glioma)/Mixed Astrocytoma Grade II & III (Frontal/Temporal Lobe): 11/2005
Surgery: Total crani resection with Gamma Knife at Scripps La Jolla (San Diego): 12/2005
Special Char: 1p/19q chromosome deletions
Chemo: Temodar with Zofran: 01/2006 to 12/2006
Anti-Seizure (anti-epileptic): Init Keppra with Topamax in 2006; Trileptal 2007 to current (1,200 mg)
MRI’s (every 6 months): No new changes as of 01/2010

   
Posted Date: 2 March 2010     

From Fairfax

To David's parents....we have lived in Fairfax for over 20 years. One of my twin daughters was diagnosed with a pilocytic astrocytoma August 2009, much smaller than David's but similar type. She had surgery at JHU in August. This website has helped her in SO many ways! I work at NIH and have been able to get her in to see Dr. Fine also...the fact that David thought so highly of him helped her realize how important it was to see Dr. Fine, even if she did not need therapy yet. I just want you to know what a gift this website is to brain tumor patients....it would be a great book! His research is excellent, his words are eloquent..we wish we could have talked to David but thankfully his journal gives us information....I am so sorry for your loss but I hope you can find some pride in what a gifted and selfless person he was to have taken the time to leave the gift of this website to those who suffer the same disease...

Thanks again....words can't express what this website has done for my daughter...and for me....

   
Posted Date: 25 February 2010     

Samantha Northcraft

DAVID!! I MADE THE CADETS!!!!! LEAD MELLO!!!! I know you would be so proud of me. I didn't even try out on mello but they put me there. As soon as Gino told me, I instantly thought about you. Hopefully one day I will be Middle Horn Leader as well. I miss you so much David. I want to share this exciting time with you and hear your excited voice. I know you are probably excited for me but it would be nice to hear you say it. I wont let you down David. I think you were the one behind getting me on mello :P

I miss you so much. I think about you all the time. It has been over a year and out of habit I still check for updates.

Much Love

FHNSAB :)

   
Posted Date: 16 February 2010     

Missi

Worked on my college submission essay today. Tough one since it revolves around my Bro's influence on me.......it's amazing how love lingers.......

   
Posted Date: 15 February 2010     

Brian

Still miss David, still come to the site hoping for an update. Can't wait to meet him one day - a huge inspiration for me.

   
Posted Date: 30 January 2010     

Susan Jarvis

To the Family of David,
It was December 2, 2004 that we were told our daughter, Megan, had a brain tumor. Since then I have followed David's journey.
David was always a source of hope, courage, inspiration, comfort, friendship and wisdom to us through his journal and also when we would see him at NIH.
May you all find peace knowing how much he touched the lives of so many.
God Bless You All

   
Posted Date: 7 January 2010     


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